Mixed Bag Of Rant

Every year during NIAW (National Infertility Awareness Week), I retell my story. In many ways it is therapeutic, but it is also a chance for me to bring awareness to a world that largely doesn’t understand what it is like to live with infertility. It serves as a chance to let those who suffer from it know that they are most definitely not alone.

My Story:
I always wanted to have a family. Always. When I married my husband in 2005, we wanted to waste no time in starting our family. We got pregnant just 5 months after we started trying; however, it ended quickly in an early miscarriage at just 6.5 weeks. I was crushed. We were given no answers other than, “Miscarriage is common. So sorry.” We kept trying. And trying… and trying. After 2 years of testing and fertility drugs still nothing. My doctor had chalked it up to Unexplained Infertility as they could find nothing specific that could be the cause. IVF was just too expensive not to mention I hated the fertility drugs, so it just didn’t feel like an option. We left things up to fate. We chose to move on with our lives.

I would love to say that we stopped “trying”. Of course, I didn’t. In a weird way, following my cycles, taking ovulation tests on top of numerous supplements pretty much became a part of life after two years. I was on my 3rd month of FertilAid when to my shock, a second line started showing up on my cheapo tests. I was sort of in disbelief. I had seen phantom lines many times before so I didn’t say anything to my husband. I kept testing (see this post), and when that digital test said “pregnant” on it, I knew that it wasn’t a fluke. We were skeptical. Not wanting to get exited. Not wanting to be disappointed. How were we supposed to feel? My doctor was fantastic. After my long history of infertility, she allowed us to be considered high risk. We were able to get an early ultrasound as part of our pregnancy confirmation appointment and we tested my beta numbers every other day for a week. We continued to be nervous until about the 12th week and then became a little more confident that this might actually happen for us. We finally were able to say: we are going to be parents!

My Jackson Robert

On September 11, 2008 our miracle, the love my life, Jackson Robert was born. I would never know a love more amazing and more powerful than the love I have for my son. Nobody could be more wanted. I hope I can tell him someday how much we went through to bring him into the world.

I would love to say that we kept popping out babies, but that is not the case. Secondary infertility became a reality. I developed fibroids about a year after having Jackson. In 2010 I had surgery to have them removed. Still no luck. No magic. No miracles. Over the next year, my monthly “pain” worsened. But it wasn’t typical. It felt different. In April 2011, I had a burst of pain and I became very ill. My doctor discovered that I had an ovarian cyst rupture. We attempted to treat the cyst with hormones, but ultimately scheduled a surgery to have it removed via laproscopic procedure. I woke up in recovery, groggy and in pain, my doctor delivered the news that she had to remove my ovary and my tube. The cyst had wrapped around my ovary and was sticking to various organs. This was more crushing news to my chances of having a sibling for my son. We also discovered at this time that I had stage 4 endometriosis. The lesions had been removed, but there was no guarantee that it wouldn’t come back.

Last fall, my husband and I decided that we would consider IVF to try and have baby #2. I wasn’t thrilled about the drugs, the appointments or the procedure, but I really wanted to complete our family. I wanted this for Jackson. For us. I didn’t even make it past the baseline testing. I currently have multiple cysts on my remaining ovary. While they have remain unchanged since last November and we don’t have an immediate need to remove them, they have all but destroyed any chances of having another baby.

We discussed adoption and to my amazement, my husband is actually on board with this. Since our first round of infertility, we didn’t really think this was a route we would want to take, so I was surprised when he was open to it. However… I am overwhelmed by the whole process and it scares me. I don’t want to be let down. There is also my age consideration. I turn 37 next week. If the process takes longer than expected, do I really want a new baby at my age? Would it really enhance my son’s life to have a sibling 5-6 years younger than him? So many questions in my head and in my heart.

We have chosen to accept our little family as is. We love our son and everything we do is for him. He is enough. We are enough.

My beautiful little family

We are okay.

Join The Movement!
So, you have heard my story. Whether or not you have had to endure infertility yourself, you can help. Maybe you know someone who is going through it. You can help. You can be a part of the movement. You can help by just learning and understanding.

You can become educated. Did you know?

• Infertility affects 1 in 8 couples of reproductive age
• There are many ways to build a family
• The disease of infertility impacts the physical, emotional and financial health of those facing it
• Those trying to conceive should know when to seek advice from a specialist. 

Become a part of it and help those of us struggling with infertility gain the support we need from our elected officials to make our family building dreams a success.

This subject is a raw and emotional subject for me. It has affected my life, my marriage and my family. Now, if I have convinced even just one person to Join The Movement, then that gives me and all others that suffer through infertility just a little piece of hope.

To learn more about Infertility and NIAW: 
Basic Understanding of the Disease of Infertility 
About National Infertility Awareness Week (NIAW)

Before I begin this post, I want to explain why I am sharing this extremely personal experience with the entire universe. I feel like infertility is a taboo subject. Most women find it too personal and too painful to talk about. I feel that way too in many ways, but I also want other women who may be going through the same thing to know: YOU ARE NOT ALONE. We don’t have to suffer in silence. We have each other.

I went in for my annual appointment with my OB. For most women this is a routine annoyance in their day. The appointment that every woman hates. Go ahead, ladies. Tell me you actually ENJOY this appointment!

This appointment was far from routine for me. I knew I was going to ask her about having another baby. I knew the answer may not be what I want to hear. I was on edge. My blood pressure was through the roof. I was nervous.

So I got around to telling my doc that we really want to have a second baby and I literally LOL’d when she said, “So what do you want to do, wing it?” Ummmm… Let’s see. It took 2.5 years to conceive Jackson. We have been trying on and off for FOUR YEARS for this one. I think I’ve been winging it long enough. Not to mention, this woman did surgery on me. Took my tube. Took my ovary. I’m thirty freaking six years old. There will be no winging it for me. She kind of apologized and said she in no way sees me as 36 with limited years of fertility left (if any). Which I guess is a compliment? Thanks for not calling me an old hag? I’ll take it.

I will spare you the details of the exam, but I will tell you, the results were not entirely good. My remaining ovary is swollen. I have tenderness. What does that mean? It means the endo is winning. So what happens next? My OB will do the baseline studies to check and see if I have a viable ovary. I have an ultrasound scheduled for next week to make sure that my remaining ovary does not have a growing endometrioma (ovarian cyst). If I do? It’s game over. My ovary will likely need to be removed and I will need to proceed with a full hysterectomy.

If everything looks okay, then we will move to the next phase which consists of a follicle study which is basically a series of ultrasounds to see if my ovary is functioning correctly leading up to ovulation. If all looks good, we will schedule a lap surgery to remove any endo and I will then be referred to a fertility specialist to proceed with IVF.

If it seems like a lot to go through, you’re right. It is. Then why? In a promise to myself, I want to live my life without regret. I know if I don’t take the steps to try and complete our family, I will always wonder, what if?  I have to try.

Even if I end up without a baby, I will know in my heart I did everything I could. Plus, I will feel good about taking control of my own health. Pushing my doctors to use their knowledge to find a solution. Not settling for the answer “You’ll just have to live with it.” That isn’t good enough for me.

So until I get a more definitive answer, I will continue to stay positive and keep the faith.

I think Jackson would prefer a playmate that actually interacts with him.

I have been compiling in my head all of the many reasons why I want Jackson to have a sibling. Compiling the reasons why I would be crazy enough to want another baby. In my head, the pros outweigh the cons. Most women are able to say, “I want another baby!” and WHAM they are pregnant. It doesn’t work that way for me. I am missing half the plumbing not to mention, I suffer from a debilitating disease that has caused years of pain and infertility. My only hope to complete my family and fulfill my dreams is to go through IVF for baby #2.

There are however a lot of reasons not to do it and these are my rebuttals.

Let’s start with the whole health thing. In my head, the pros outweigh the cons by a mile. You know… no biggie. If I try to have another baby I’ll either miscarry or destroy my womanhood forever (which was bound to happen whether I tried to have another baby or not). So from a health perspective alone (let’s not discuss the mental anguish that goes with having a miscarriage), I may as well give this another go, yes? One of the biggest factors I didn’t attempt IVF for baby #1 is because of my weight. BMI supposedly plays a big factor in the IVF process. I believe it is recommended to have a BMI under 30 to increase success. Regardless of that BMI number (which I think is kind of a load of crap anyway), I am 1,000 times healthier than I was when I was TTC the first time around and now have a healthy BMI of 25 to boot. I have to believe that will make a difference.

Finances. IVF is fucking expensive yo. I sat down and thought about my next new car which I am due for in a couple years. Now, if I can afford a Lexus, I can afford to make a baby. Period. No doubt, it is painful to think about the expense of getting pregnant when others are so easily able to get knocked up at no cost at all. The truth is, the cost is an excuse. I do have some funds available through insurance. The majority of IVF is not covered, but I may be able to use it for some tests and drugs. Beyond that, there is always financing available. I simply cannot use money as an excuse not to try this.

Sibling rivalry. What if Jack and his new brother/sister end up hating each other? I hope that is not the case, but I am willing to take the chance that it will work out for the best. Jack has expressed his interest more than once about his desire for a brother or sister and his apparent confusion as to why his friends have one and he doesn’t. It breaks my heart. I honestly believe that he will be a great big brother and great helper for his mom and dad. I have gotten “the grass isn’t always greener on the other side” argument about keeping Jack an only child; however, despite the years of aggression my sister and I had for each other growing up, I wouldn’t have traded it for anything as we are close now as adults. I don’t want the fear of rivalry to dictate this choice.

Fertility Drugs. IVF requires a number of drugs to be taken, injected or whatever other means they intend to make eggs and babies. My history with fertility drugs is not a positive one. As is the case with most prescription medication, I am highly sensitive to them. If they list a side effect, I will likely experience it. There is also the weight gain that comes with the drugs. If it doesn’t work out, I’m left with an extra very unwanted 10-20 pounds and no baby. After my ridiculous amount of hard work over the last 2 years to lose weight, this does not excite me. If it DOES work out… I’ll be having a BABY and that will include some extra pounds anyway (although… this time around, I will hopefully have the willpower to pass up on my cravings for Burger King burgers). It’s worth a little bit of weight gain and a little bit of crazy to get my 2nd baby in my arms.

I recently got the chance to chat with an adult who was born from IVF back in the 80’s. He discovered me and my blog via Twitter and wanted to share his story with me. He provided me with a great deal of inspiration to add to my many reasons not to give up. He said, knowing what his mom had to go through to bring him into the world gives him purpose. I love that and heck if I don’t want to meet this guy’s mama- she sounds awesome. But it is so true- women who go through treatment or adoption to have a baby go to the ends of the earth to bring their babies into their hearts and into this world. It leaves little room for doubt- these babies are MEANT to be here.

With all of this said, it is not an easy decision. It will affect my mind, my body and my family. I may not get the answer I want to hear. I may be wheeled in a week later to have a full hysterectomy. Regardless, what I need the most in my infertility chapter is true closure. Not a list of stats. A simple yes or no will do.

On Fit Friday, I talked about commitment. Making a commitment to something isn’t always easy when it requires a massive lifestyle change overhaul. Determining what your key motivator is will lead to success.

One of my top motivations for a healthy lifestyle was to try and treat my endometriosis holistically meaning no hormone treatment and no more surgeries. Estrogen is known to stimulate the growth of endometrial tissue, so reducing estrogen levels is the key. I was told that reducing BMI and getting regular exercise will naturally lower estrogen levels which in turn will help alleviate pain. I have been on hormone replacement therapy (HRT) since my laparoscopy/oophorectomy last August and it has not been fun, so the only way to really know if my weight loss has helped my condition was to stop therapy. Upon discovering that Medifast’s heavy reliance on soy protein in their meals was worsening my endo, my first cycle test was a failure and I was in a world of pain. Being stubborn and persistent, I decided to stay off the hormones for another month to see what would happen. I started seeing my chiropractor and added an antioxidant powder and progesterone cream to my daily vitamin regimen. I continued working out 3-5 days a week and started limiting my Medifast meals to their soy-free products (and there aren’t many to choose from). My TOM was wicked late (day 35… if I was TTC I would’ve taken about 100 pregnancy tests by this point), but shockingly… it hasn’t been horrible. Dare I say… normal? Sure the normal bloating and headaches have been present but the cramping has been normal and not “endo” cramping (if you have endo… you know what I mean). This makes me hopeful. I had been seriously considering a hysterectomy next year and the thought of it, at age 36, makes me sad. A hysterectomy to me means losing my womanhood and intensifying the fact that I am indeed infertile. I don’t want to give in. So, being relatively endo pain free this cycle is a huge victory.

I am so freaking proud of myself for what I have accomplished. There isn’t a single part of this journey that has been easy or fun, but knowing that I may have won the battle over controlling my endo pain through diet and exercise is worth every bit of struggle.

Sadly though, I have reached my Medifast exhaustion. I was supposed to be at goal 2 months ago. Yes, I have made extreme changes to my body (most especially by dropping HRT) and I’m trying to work through it. The truth is, I’ve had small cheats. Nothing big, but a couple beers, a couple cookies, a bun with my hamburger… all of those things throw you out of the fat burning stage of Medifast. You can’t do it on the program, but somehow I have talked myself into believing I can which is what got me here in the first place, so WHY am I doing it??? Ugh. Stupid brain.

My weigh in today… *sigh*. I’m back up 3 pounds this time up to 157.5. WTF. I confess I had some cheats. A bit of alcohol. A bite of chocolate chip banana muffin. But 3.5 pounds worth of cheats??? My counselor kind of shrugged it off. Let’s face it, TOM = water retention = bloat. I wasn’t going to win that epic battle. I’m trying not to let it bother me, but it does. I’m frustrated.

I know I have said it in previous weeks, but my goal this week is to be 100% on plan. NO cheats. No little bites or tastes. No alcohol *cries*. I will drink 80+oz of water a day. This goal is lofty, but I was challenged to get two 15 minute bursts of exercise EVERY day and 3 days of strength training in this week. Surely I can manage two 15 minute bursts of exercise, yes? Perhaps if I actually get up when my alarm goes off…

Based on my stress level on this lovely Monday (yes, sense my sarcasm), these bursts of exercise will probably do me some good in that department.

What are your goals for the week?

99% of the time I am at peace with my infertility.

I am okay that my one little boy, my miracle, will be my only child.

Then, that sneaky little 1% slithers in and my heart breaks into a thousand pieces. Many moms (especially 1st time moms) already have their canned answer for the question, “When will you have another?” I always thought I would have 2 kids. I never imagined raising an only child and always wanted a perfect little happy family. If I was lucky, a boy and a girl.

Those who have struggled with infertility get it. The frustration. The desperation. The hurt. The feeling that something critical is missing in your life. Make no mistake, I take nothing for granted when it comes to my son. I remember being pregnant like it was yesterday. I think I sometimes still feel the ghost kicks in my tummy. But, finally being able to get pregnant once, I got a little cocky. I figured it would be easy the 2nd time around. I did this once, I can do it again, right?

I had no idea how wrong I would be.

Even before my surgery this year to remove what I thought was just going to be a little endo scarring and an ovarian cyst, my husband and I made the decision that we would be done. This would be our choice and not the choice of a doctor or my body. We didn’t want to have to endure two years of not seeing 2 lines on those damn tests. We didn’t want to go through another miscarriage. We didn’t want to spend the money on extreme fertility treatments. We were done.

I had no idea how final those words would be.

Waking up from surgery, my doctor came up to me with the sympathy face and in my haze, even I understood when she said they had to take the ovary that our decision was now set in stone. Being down an ovary, the damage caused by the endometriosis and the risk of its return if I am untreated determined my sentence.

Those who do not know what happened to my poor battered insides still ask the question, “When are you going to give Jack a sibling?” Or make comments such as, “Wow, that boy needs a brother or sister to play with.” Then there are those who know what happened and still have the audacity to ask, “Well you still have one good ovary, right?” Um. It’s not just an ovary issue, it’s an endo issue. So, as “at peace” as I like to think I am with our fate, the questions still sting. They are constant reminders of how I can’t have any more children and there are no other alternatives (at least ones that normal people like us can afford).

I try to recall and hang onto every moment with Jackson, all the way back to my pregnancy. I’ll never get to experience any of it again and I never want to let go of how magical it all is. Being a mom is amazing and I feel so lucky to get the chance to be one at all.

So before you open your mouth to ask a mom any of the above-mentioned questions, try to remember that not every woman is a child making machine like Michelle Duggar and think about how deeply personal that question actually is.